Literature, journals, newsletters

 

 Information resources

Building a Future for Deafblind People: a general information leaflet about Sense.

Usher Syndrome: general information about Usher syndrome and Sense Usher Services.

Deafblind Communicator Guide Services: who are communicator-guides and what do they do.

Teach Yourself the Deafblind Manual Alphabet: Cards illustrating the manual alphabet used by many deafblind people in the UK.

Sense Annual Review 1996: an overview of Sense's work and achievements over the year.

MAGAZINES

Talking Sense: £10 annually. Sense's quarterly magazine is essential reading for anyone involved with deafblindness - deafblind people, their families, professionals and policy makers. Please request a subscription form.

Deafblind Education: £10.00 annually, including membership of Deafblind International. This newsletter of Deafblind International is published twice a year and covers developments world wide.

BOOKS

Do the Rights Thing! An Advocacy Learning Pack: £20.00, by Angie Lee-Foster and David Moorhead, Sense 1996
How do you enable multiply disabled people to discover and exercise their preferences and rights? In what ways can deafblind people join in their communities? What are some of the difficultires in getting advocacy off the ground? This dynamic learning pack, comprised of a workbook of activities and exercises and a reader of articles and essays, helps you to explore these issues and much more.

Making Contact, A Good Practice Guide: How to Involve and Communicate with a Deafblind Person: £10.00, Graham Hicks, Sense 1996
Advice, ideas and guidance on how to include people with acquired deafblindness in personal, public and work related meetings is given in the comprehensive guide written by Graham Hicks, Sense's Development Officer. Covering subjects as diverse as methods of communication, venues for conferences, and booking interpreters, the guide complements the Disability Discrimination Act and is a must for social services, local authorities and businesses striving to meet the needs of deafblind clients.

Good Sense: The National Deafblind and Rubella Association 1955-1995. A History by Peggy Freeman, MBE: £9.95, Sense 1996
A vivid and personal account of Sense's history by one of its founders. Traces the growth of the organisation from a tiny parents' support group to a major organisation unique among British charities. Also a valuable resource for anyone interested in the development of social legislation in the UK.

Christopher, a Silent Life: £4.00, Margaret Brock, Bedford Square Press 1984.
Updated edition of Margaret Brock's story of life with Christopher, her deafblind son. A unique account of the struggles of brining up a deafblind child after the war by one of Sense's founders.

Making Sense of the World - A guide for carers working with people who have sensory and learning disabilities: £5.00, H. Bradley and B. Snow, Sense 1986, updated 1994.
Bob Snow is Head of Development for Sense and Helen Bradley is a psychologist. Together they created a comprehensive introductory guide for carers working with adults who have combined learning and sensory disabilities. Includes a useful resource list and guide to further reading. Especially suitable for students.

Aromatherapy & Massage for People with Learning Disabilities: £9.50, H. Sanderson & J. Harrison, Hands on Publishing 1993.
Aromatherapy and massage can be very helpful to people who have severe and profound learning disabilities. This lively and informative book provides a comprehensive overview of the many ways the authors and other practitioners have put theory into practice.

Vision for Doing: £14.00, S. Aitken and M. Buultjens, Moray House Publications 1993.
An excellent resource for laymen and specialists alike covering visual impairment in the context of multiple disabilities. A must of educators, the book also covers visual assessment linked to curriculum development.

The Education of Dual Sensory Impaired Children: recognising and developing ability: £16.99, D. Etheridge, editor, David Fulton Publishers 1995.
This book is about ability, not disability. It is particularly useful under the Education Reform Act, 1988, which ensures that dual sensory impaired children, along with all others, have the right to a broadly based and balanced curriculum. By focusing on individual children, the book illustrates different educational methods.

A Sensory Curriculum for Very Special People: £9.95, F. Longhorn, Human Horizon Series, Souvenir Press, 1988
The development of sensory curricula continues to evolve in special schools and other settings across the UK. Based on practical experience and reflecting ongoing changes, this book presents a useful overview of new developments.

Basic Abilities, A Whole Approach: A developmental guide for children with disabilities: £13.50, S. Levitt, Human Horizon Series, Souvenir Press 1994.
Focus a what a child can do, not what he can't. This is the message of the refreshing new practical approach presented in this user-friendly book for people who work with and care for children with multiple disabilities. Methods discussed reinforce each aspect of a child's development and help carers and children have fun while working together.

Objects of Reference: £3.80, Adam Okelford, RNIB 1993.
Objects of Reference, one of the most basic and useful means of communication for visually impaired children who have learning disabilities, are clearly explained in this useful booklet. It outlines one method of teaching communication skills by assigning specific meanings to objects.

REPORTS AND PROCEEDINGS

Warwick '89 Papers on the Education of the Deafblind Volumes 1 & 2: £13.50, A.B. Best, Editor, Sense 1989.
Two volumes of papers and workshops given at Warwick '89, a European conference held at Warwick University on thought and new approaches to the education of sensory impaired and multiply disabled children and young adults.

Think Dual Sensory - draft good practice guidelines for older people with dual sensory loss: £1.50, Sense, 1995 (free publication, cost is for postage and packing)
This document sets out good practice guidelines for social and health care services in relation to older people whose lives are complicated by significant dual sensory loss.

Breaking Through: £2.50, Deafblind Services Liaison Group, 1988.
Report by the Deafblind Services Liaison Group to help local authorities identify needs and create a framework within which comprehensive services for deafblind people can develop.

A Study of the Numbers and Needs of People in Wales with a Dual Sensory Handicap: £7.50, Dr. Billie Shepperdson, Sense, 1991.
Commissioned by Sense and supported by the Welsh Office, this study provides a comprehensive overview of deafblind people's needs in Wales.

Towards Cooperative Working - A Review of Services for deafblind people in the South West of England: £5.00, Peter Holman, Sense West, 1996.
A review to stimulate debate on progress made and work still needed to meet the complex needs of deafblind people in the region.

Report on Dual and Multiple Sensory Handicapped People: £7.50, M. Dodds, Sense 1991.
A survey of the numbers of deafblind people in Northern Ireland.

Coming Together: Proceedings of a seminar concerning the formation of a UK Coalition on Deafblindness: £4.00, Deafblind Services Liaison Group, 1994
Should a UK Coalition be formed? A wide range of interest groups address this question in this account of the proceedings of a DBSLG conference in Birmingham in November 1993. The opinions of deafblind people, professionals, carers and families are all included.

Deafblind Education, developing and sustaining appropriate provision: Proceedings of the UK Conference, 23rd March 1994: £5.50, J. Summerscale & E, Boothroyd, editors, Sense, 1994.
Proceedings of Sense's innovative education conference. Topics include intervention with children, objects of reference, developmental theory and accessing the National Curriculum. Thirteen original papers by leaders in the field are presented, each addresses pertinent issues on the education of deafblind children and young people. Eileen Boothroyd is Director of Education at Sense.

RUBELLA AND IMMUNISATION

Hands Up! For rubella immunisation: free, 1993, Health Education Authority.
Aimed at 10-14-year-olds, this leaflet explains the need for rubella immunisation, how and when the disease can be dangerous and how the vaccination helps avoid these dangers.

A Guide to Childhood Immunisations: free, Health Education Authority.
For parents of young children and babies, this 16-page booklet provides information on the immunisation programme including rubella, diphtheria, whooping cough, tetanus, polio, measles and mumps. An immunisation schedule for planning a child's vaccination programme is also included.

The MMR Vaccine - Give your child something you never had: free, Health Education Authority
This leaflet explains how children can be protected against the dangers of measles, mumps and rubella through the MMR vaccination.

Rubella in Pregnancy - A review of rubella as an infection in pregnancy: £4.00, Nick Sidle MB BS BSc, Sense 1985.
This comprehensive review includes reports on rubella and pregnancy from 1941 through the mid 1980s.

USHER SYNDROME

Usher Syndrome - Awareness and Education Pack: £2.50, Sense, Ongoing.
An information pack about Usher syndrome for people with Usher, parents, teachers, care workers and concerned friends. The pack is part of a programme of awareness raising and education about Usher syndrome in the deaf community.

Usher Syndrome in the School Population: £2.50, M. Guest and F. Roper, Sense 1988.
A survey of pupils with Usher syndrome in mainstream education, units for hearing impaired children and schools for deaf students in the UK. Mary Guest is Head of Sense Usher Services.

Losing Touch - A Survey of Sign Language Reception of and Modification for Deaf People who are Losing their Sight: £2.50, D. Woodford, Sense and CACDP 1987.
How do deaf people who communicate mostly by sign language cope when their vision becomes impaired? This investigation explores their communication needs and offers insights and suggestions to professionals and people with Usher.

Out of Touch: £2.50, D. Woodford, Sense 1989.
Survey of communication methods by auditory and visually impaired patients in hospitals for the mentally handicapped in England and Wales.

European Usher Syndrome Study Group: £5.50, Proceedings of the Seventh EUSSG 1993, M. Guest, Editor.
Twelve papers on Usher syndrome covering topics ranging from communication to clinical studies and rehabilitation.

European Usher Syndrome Study Group: £5.00, Proceedings of the Eight EUSSG 1995, M. Guest, Editor.
Seven papers which were presented to the group on topics as diverse as psychological and support programmes and autonomy of disabled people. Includes state of the art reports from Europe.

Parents Answer Back: £2.50, M. Guest and R. Singh, Sense, 1991.
A survey of parents of children who have Usher syndrome.

Educational Management of Deaf Pupils with Usher Syndrome: £2.50, W. Lynas, Sense 1992.

US Families: Free, Sue Sturley, Editor.
A quarterly newsletter for families of children with Usher syndrome. Please apply to be put on the mailing list.

The Eye Clinic and Retinitis Pigmentosa: Single copies free, M. Guest and B. Norton, Sense and BRPS, 1994.
This leaflet describes the eye tests that may be done and questions asked to diagnose retinitis pigmentosa.

What we think people with a sight and hearing impairment do for a living... What people with a sight and hearing impairment really do for a living: Free, Vocational Opportunities for Deafblind People Working Party, RNIB.
Meet five deafblind people at work through this booklet that provides useful information about communication, training and rehabilitation agencies.

Usher in the Deaf Community Resource Materials: To be ordered separately, Produced by the Sense/British Deaf Association Usher in the Deaf Community Project, 199
Originally designed for use by deaf people, these publications also provide information for the family and friends of people with Usher as well as professionals. Publications include "What is Usher Syndrome?", "Usher and You", "Usher in the Family" and "Usher Genetics Book". Please ask us for a separate order form for this series.

Original address of this page:
www.sense.org.uk/information

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